Welcome to Our House - The Analogy ©

Having a baby is special. For some, it’s a lifelong dream, for others, a wonderful surprise. Either way, many of us have thought about taking this journey and whether it’s planned or a pleasant surprise, we all have preconceived ideas about what our child will look and be like. But what if it isn’t what we planned or expected? This is a short story I have written for parents who have or are expecting an exceptionally special child.

Welcome to our House – An analogy

After many months of dreaming, you finally decide it’s time. You are going to build that perfect house of your dreams. You have saved and saved, and now it’s time to put your plan into action. You find a wonderful, perfect piece of land in the city. It’s exactly what you are looking for – because it’s the plan that everyone talks about. You envision the all brick house sitting on luscious green grass, surrounded by a white picket fence. Inside is a marble foyer leading into a family room with beautiful oak hardwood floors. Granite lines the kitchen counter tops and there is an island sink in the middle. Upstairs has four perfect bedrooms and the master bedroom has an ensuite bathroom and an enormous walk-in closet, of course. It’s truly a dream come true, and it’s only a matter of time. You purchase the land and think to yourself, in nine short months, you will have it all.

But suddenly your agent calls to tell you, the land is not properly zoned, and the city has not approved it for building your perfect home. They have instead, given you land in the country, where an old country home sits. You are absolutely devastated, your dreams vanishing right before your eyes. You know you can’t back out now, you need a place to live, and despite it not being what you wanted, you know that somehow you will manage and that you can continue on.

You tell everyone what has happened, and everyone is disappointed, some even offering their condolences. You know that everyone else has a nice city home, and that was what you had planned, but you have to come to terms with the fact that you must learn to live in the country.

You go to see the property every month until closing and something funny happens. You start to fall in love with the place. The air is fresh, it’s peaceful and serene. There’s a pond on the land, and the house, though not a new all brick home, is quaint, and has lots of hidden potential. You soon realize it’s not a awful place, it’s just a different place. It’s slower paced than the city, less noisy and flamboyant, but it’s beautiful none the less. And in the process, you soon realize you may even get to meet some new and wonderful neighbours.

Its closing day and you suddenly find yourself full of anticipation, but you are still a little worried. After all, it isn’t what you had originally hoped for, and the house may need some repairs. But you are determined to accept it, and tackle everything one step at a time. You open the front door, and suddenly you are thrilled with what you see. The house is lovely, and has lots of character. The rooms are smaller but it’s decorated with beautiful attention and detail. The kitchen has marble instead of granite, and the bathroom has a soaker tub instead of a Jacuzzi. There isn’t a walk-in closet in sight, but the rooms all come with an indescribable view. Somehow, you just know that it was always meant to be and that this is now home.

This is my analogy of what it will be like for people who discover that they will be caring for a baby with Down syndrome. For us, it is not a terrible place to be, it is a journey full of surprises, milestones and discovery like any other child. And as the story suggests, sometimes it’s only a matter of ‘point of view’, and surprisingly, once you have been there, you don’t want to be anywhere else. The journey, like all others doesn’t come without some bumps in the road, but once you find your way, it’s all about the place you discovered, in most cases - quite by random chance
Author: Sandi Graham-McWade, Copyright

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Wednesday, April 21, 2010

My Journal - Week 35 (21Apr10)

Early Intervention has wonderful results!

Today Hunter saw his E.I. therapists Jenn and Kay.   I want to share with you what happened today.  Absolutely NOTHING!!

Let me explain.  Last couple of weeks ago, on 8th April, Jenn saw that Hunter had lots of muscles and the ability to do the things she was looking for, but would not do them for her.  (Kneeling, sitting etc.)  At the end of that session, we determined that he probably needed Kay (our Osteopath) to see if there was something preventing him from doing the things we could see he knew how to do but wouldn't/couldn't.  And so onto today.  The tag team arrived promptly at 12 noon, and were ready to get to work with Hunter.  We had been working with Hunter diligently for the last two weeks on his independent sitting, standing and independent play.  We put Hunter up on the kitchen table, sat him down and there he sat showing off for Jenn and Kay.  He remained sitting there all by himself with the largest grin on his face.  Then we put him down on his tummy, and he pretty well got up onto his knees and rocked back and forth for them.
Jenn and Kay could not believe what they were seeing.  And as a result, there was absolutely nothing they could do, but watch in awe and speak many wonderful praises.  With that, Kay signed off an end to her treatment/sessions for Hunter.  He no longer needs any assistance from her.  It's truly bitter sweet.  We love everything that Kay has done for Hunter, but we are very happy that he has progressed to the point of not needing her for therapy any more.
Everything that Jenn was going to work on to help Hunter, he figured out by himself and accomplished it.  All within "typical" time frames.
Hunter continues to show us that he has no boundaries, and the little hiccups that happen along the way he sorts out for himself.  Amazing.  How could we not be proud??

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