Welcome to Our House - The Analogy ©

Having a baby is special. For some, it’s a lifelong dream, for others, a wonderful surprise. Either way, many of us have thought about taking this journey and whether it’s planned or a pleasant surprise, we all have preconceived ideas about what our child will look and be like. But what if it isn’t what we planned or expected? This is a short story I have written for parents who have or are expecting an exceptionally special child.

Welcome to our House – An analogy

After many months of dreaming, you finally decide it’s time. You are going to build that perfect house of your dreams. You have saved and saved, and now it’s time to put your plan into action. You find a wonderful, perfect piece of land in the city. It’s exactly what you are looking for – because it’s the plan that everyone talks about. You envision the all brick house sitting on luscious green grass, surrounded by a white picket fence. Inside is a marble foyer leading into a family room with beautiful oak hardwood floors. Granite lines the kitchen counter tops and there is an island sink in the middle. Upstairs has four perfect bedrooms and the master bedroom has an ensuite bathroom and an enormous walk-in closet, of course. It’s truly a dream come true, and it’s only a matter of time. You purchase the land and think to yourself, in nine short months, you will have it all.

But suddenly your agent calls to tell you, the land is not properly zoned, and the city has not approved it for building your perfect home. They have instead, given you land in the country, where an old country home sits. You are absolutely devastated, your dreams vanishing right before your eyes. You know you can’t back out now, you need a place to live, and despite it not being what you wanted, you know that somehow you will manage and that you can continue on.

You tell everyone what has happened, and everyone is disappointed, some even offering their condolences. You know that everyone else has a nice city home, and that was what you had planned, but you have to come to terms with the fact that you must learn to live in the country.

You go to see the property every month until closing and something funny happens. You start to fall in love with the place. The air is fresh, it’s peaceful and serene. There’s a pond on the land, and the house, though not a new all brick home, is quaint, and has lots of hidden potential. You soon realize it’s not a awful place, it’s just a different place. It’s slower paced than the city, less noisy and flamboyant, but it’s beautiful none the less. And in the process, you soon realize you may even get to meet some new and wonderful neighbours.

Its closing day and you suddenly find yourself full of anticipation, but you are still a little worried. After all, it isn’t what you had originally hoped for, and the house may need some repairs. But you are determined to accept it, and tackle everything one step at a time. You open the front door, and suddenly you are thrilled with what you see. The house is lovely, and has lots of character. The rooms are smaller but it’s decorated with beautiful attention and detail. The kitchen has marble instead of granite, and the bathroom has a soaker tub instead of a Jacuzzi. There isn’t a walk-in closet in sight, but the rooms all come with an indescribable view. Somehow, you just know that it was always meant to be and that this is now home.

This is my analogy of what it will be like for people who discover that they will be caring for a baby with Down syndrome. For us, it is not a terrible place to be, it is a journey full of surprises, milestones and discovery like any other child. And as the story suggests, sometimes it’s only a matter of ‘point of view’, and surprisingly, once you have been there, you don’t want to be anywhere else. The journey, like all others doesn’t come without some bumps in the road, but once you find your way, it’s all about the place you discovered, in most cases - quite by random chance
Author: Sandi Graham-McWade, Copyright

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Monday, July 12, 2010

My Journal - Week 47 (12Jul10)

Inchworm, Crawling and now Sitting?

I guess it's true, things come in threes.  Just the other day, Saturday to be exact, I was packing my bags for our stay at a hotel this past weekend for my cousin's wedding.  While I was busy packing, Daddy was watching Hunter on our bed.  One minute I saw him on his belly the next I come back into the bedroom and he's on his bottom sitting up.  I made a comment to Daddy who promptly tells me, he thought I knew Hunter was doing this already.... He was?  Daddy had just witnessed Hunter transition from tummy and all fours to sitting!  How exciting... but yet again, I missed it. Boooo!

So, onto our weekend.  We had a fantastic time at my cousin Andrew's wedding, he was amazing and his bride Raji was beautiful as ever.  I was lucky to get a few (330) pictures of the event.  I have a few that I will post today, of what I like to call "The babies four".  I will post more later this week, as these first ones are from Grandma's camera.  My 300 pictures are on my professional camera, and I have to go through them all first.
While in our hotel room, we witnessed Hunter crawling on the bed, a great sight!  It is definitely a modified crawl, which I like to call the inchworm-commando crawl, and though it is funny it is definitely his newest method of travel.   Fast-forward to today, I brought Hunter down stairs to get him his lunch, and I put him on his hands and knees to play while I went into the kitchen to get his food.  I came back into the family room and was talking to Daddy on the phone.  I heard Hunter banging on his Leapfrog drum (which Aunty Melissa bought for him) and I hear him banging on it, but it isn't making any sound.  I remembered that I had turned it off last night, and I went over to turn it on for him.  Without even realizing it, I bent down to turn it on and walked back to the couch, and then it hits me.  Hunter was SITTING down with the drum in front of him.  I turn to look at him, (he's happy banging away now) and ask him, how did you do that?  I know I didn't put him down on his butt, I put him down on his tummy!  Well, I guess he's figured out he doesn't have to wait to show me that he can transition to sit up by himself.  (Side note:  all those PT sessions that we do with him, that Jenn showed us to do when she's not here obviously paid off.)  And with that, I am desperately trying to get this latest achievement of transition sitting on video.  He has been able to go from sitting to tummy for quite a while now.  I did manage to get the Inchworm-Commando Crawl on video, but you will have to keep in mind, I recorded it after watching him do it rapidly four times before, so in the video he is pretty tired of doing it.  But first, here are some pictures from Grandma's camera at the wedding:

[I am having so much fun, this is my first wedding!]

[Don't I look dapper!  And yes I was a good boy for the whole thing!]

[We are the babies four!  And of course our mommies too!]
[Hunter 11mos, Sophia 13mos, Alex 6mos, & Rosie 2mos]

[Did someone say clap?  I was clapping for everyone!]

And here below is a video of Hunter doing his Inchworm-Commando crawl, to Grandma and Daddy.  The object he is chasing is his Playskool Horsey on wheels!  Crazy thing keeps rolling away....
And you wont believe this, as I am writing this entry, Hunter decides to try and sit again, and I had to quickly grab the camera to record it.  But as usual when Hunter knows he's being recorded, things come to a halt.  I got most of the attempt, and he got most of the way into sitting, but decided that he'd rather go back to his tummy.  Oh well, I will get the full version sooner or later for now, it's just the preview!  And in the meantime, you can watch these two cute videos!

This is Hunter's new way of getting around. It started off being just an Inchworm attempt. Then later he tried the Commando crawling. Somehow he merged the two and it became the Inchworm-Commando Crawl. Yeah for Hunter!

Would you believe I was actually able to catch an attempt on video? I asked Hunter to show me the sitting, and sure enough he did. You can additionally hear Grandpa in the background making his request too.  What a talented boy. Hardworking and obviously tired out from demonstrating to me for the last hour!

Hopefully these pictures and videos were worth the wait.  They were for me.  And, as promised I will get those other pictures from my personal camera posted as soon as I can.  There are lots of great shots of Hunter and Daddy.

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