Welcome to Our House - The Analogy ©

Having a baby is special. For some, it’s a lifelong dream, for others, a wonderful surprise. Either way, many of us have thought about taking this journey and whether it’s planned or a pleasant surprise, we all have preconceived ideas about what our child will look and be like. But what if it isn’t what we planned or expected? This is a short story I have written for parents who have or are expecting an exceptionally special child.

Welcome to our House – An analogy

After many months of dreaming, you finally decide it’s time. You are going to build that perfect house of your dreams. You have saved and saved, and now it’s time to put your plan into action. You find a wonderful, perfect piece of land in the city. It’s exactly what you are looking for – because it’s the plan that everyone talks about. You envision the all brick house sitting on luscious green grass, surrounded by a white picket fence. Inside is a marble foyer leading into a family room with beautiful oak hardwood floors. Granite lines the kitchen counter tops and there is an island sink in the middle. Upstairs has four perfect bedrooms and the master bedroom has an ensuite bathroom and an enormous walk-in closet, of course. It’s truly a dream come true, and it’s only a matter of time. You purchase the land and think to yourself, in nine short months, you will have it all.

But suddenly your agent calls to tell you, the land is not properly zoned, and the city has not approved it for building your perfect home. They have instead, given you land in the country, where an old country home sits. You are absolutely devastated, your dreams vanishing right before your eyes. You know you can’t back out now, you need a place to live, and despite it not being what you wanted, you know that somehow you will manage and that you can continue on.

You tell everyone what has happened, and everyone is disappointed, some even offering their condolences. You know that everyone else has a nice city home, and that was what you had planned, but you have to come to terms with the fact that you must learn to live in the country.

You go to see the property every month until closing and something funny happens. You start to fall in love with the place. The air is fresh, it’s peaceful and serene. There’s a pond on the land, and the house, though not a new all brick home, is quaint, and has lots of hidden potential. You soon realize it’s not a awful place, it’s just a different place. It’s slower paced than the city, less noisy and flamboyant, but it’s beautiful none the less. And in the process, you soon realize you may even get to meet some new and wonderful neighbours.

Its closing day and you suddenly find yourself full of anticipation, but you are still a little worried. After all, it isn’t what you had originally hoped for, and the house may need some repairs. But you are determined to accept it, and tackle everything one step at a time. You open the front door, and suddenly you are thrilled with what you see. The house is lovely, and has lots of character. The rooms are smaller but it’s decorated with beautiful attention and detail. The kitchen has marble instead of granite, and the bathroom has a soaker tub instead of a Jacuzzi. There isn’t a walk-in closet in sight, but the rooms all come with an indescribable view. Somehow, you just know that it was always meant to be and that this is now home.

This is my analogy of what it will be like for people who discover that they will be caring for a baby with Down syndrome. For us, it is not a terrible place to be, it is a journey full of surprises, milestones and discovery like any other child. And as the story suggests, sometimes it’s only a matter of ‘point of view’, and surprisingly, once you have been there, you don’t want to be anywhere else. The journey, like all others doesn’t come without some bumps in the road, but once you find your way, it’s all about the place you discovered, in most cases - quite by random chance
Author: Sandi Graham-McWade, Copyright
©

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Thursday, June 10, 2010

My Journal - Week 42 (10Jun10)

One small step for Man, one giant leap for HUNTER....

Yesterday Hunter had his monthly Early Intervention therapy with Jenn.  I have to say, what a wonderful time we had.  Hunter never ceases to amaze me (and Jenn) when she comes.  Would you believe, (we have been helping clap Hunter's hands together for a while now, just for fun) that as soon as she came he decided to clap his hands for her by himself??  The reason this amazes me is because he has never done this yet!  And sure enough, as we have noticed, he loves to show off for Jenn, without prompting.  Up on all fours, trying to crawl for her!  He puts things in his bucket and shows her how independent he is.  Once again, I am floored!
She has pointed out to me yet again that Hunter is definitely in the typical range of development and she is not even using the Ds charts for him.  I am very happy that he is working so hard and it's paying off.  He is such a determined baby, and you can see if something isn't happening for him that he gets frustrated because he wants so badly to do it - like crawl forward (instead of only backward!)  We are working on using his hips to take independent steps.  He may be a bit locked up, because he thinks his hips are one unit!!  On a side note, we have been noticing that Hunter is certainly aware of object permanence, he is very weary if I disappear for a few seconds.  He makes it very obvious that he is displeased if I put him in his Einstein Exersaucer and go to the washroom or kitchen - he yells "Momma!".  I should have realized that it was coming, since he has been searching under the carpets for things (like the floor?!?) lately!

On the teeth front, would you believe Hunter has now five teeth?  Where in the world are these teeth coming from??  Three on top and two on the bottom.... It's quite amazing since I didn't have any till nearly a year old.

On a publishing note:
My book for children with Down syndrome is nearly ready to send off to the publisher.  (Finally).  I have finally received all the illustrations and cover design.  Since I had such a problem with my last publisher, I am changing publishers to a Canadian one, simply to ease pricing.  I will definitely put out a post when this new book, "I have Down syndrome, what does that mean?" will be ready.  I am very excited about this!

Regarding my Forum's on MedHelp:
I have been recently made a Community Leader for the Genetics Community Forum.  I have been the Community Leader for the Down syndrome Community for some time now but I find that many women visit the Genetics forum before the Ds forum, simply because many women are in the prenatal testing stages, and have lots of questions.  I am so very happy to be able to provide answers and assistance.

1 comment:

  1. Can you give the week of the Feb. link to the Family Guy clip.? Your Feb.21 didn't work cause there isn't a Feb.21. I'm so glad Hunter is doing so very well!! How about you? You sound positive.That's good. Have you seen the posts of my Buddy??ChezKleinsteMotte will take you there.

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