Welcome to Our House - The Analogy ©

Having a baby is special. For some, it’s a lifelong dream, for others, a wonderful surprise. Either way, many of us have thought about taking this journey and whether it’s planned or a pleasant surprise, we all have preconceived ideas about what our child will look and be like. But what if it isn’t what we planned or expected? This is a short story I have written for parents who have or are expecting an exceptionally special child.

Welcome to our House – An analogy

After many months of dreaming, you finally decide it’s time. You are going to build that perfect house of your dreams. You have saved and saved, and now it’s time to put your plan into action. You find a wonderful, perfect piece of land in the city. It’s exactly what you are looking for – because it’s the plan that everyone talks about. You envision the all brick house sitting on luscious green grass, surrounded by a white picket fence. Inside is a marble foyer leading into a family room with beautiful oak hardwood floors. Granite lines the kitchen counter tops and there is an island sink in the middle. Upstairs has four perfect bedrooms and the master bedroom has an ensuite bathroom and an enormous walk-in closet, of course. It’s truly a dream come true, and it’s only a matter of time. You purchase the land and think to yourself, in nine short months, you will have it all.

But suddenly your agent calls to tell you, the land is not properly zoned, and the city has not approved it for building your perfect home. They have instead, given you land in the country, where an old country home sits. You are absolutely devastated, your dreams vanishing right before your eyes. You know you can’t back out now, you need a place to live, and despite it not being what you wanted, you know that somehow you will manage and that you can continue on.

You tell everyone what has happened, and everyone is disappointed, some even offering their condolences. You know that everyone else has a nice city home, and that was what you had planned, but you have to come to terms with the fact that you must learn to live in the country.

You go to see the property every month until closing and something funny happens. You start to fall in love with the place. The air is fresh, it’s peaceful and serene. There’s a pond on the land, and the house, though not a new all brick home, is quaint, and has lots of hidden potential. You soon realize it’s not a awful place, it’s just a different place. It’s slower paced than the city, less noisy and flamboyant, but it’s beautiful none the less. And in the process, you soon realize you may even get to meet some new and wonderful neighbours.

Its closing day and you suddenly find yourself full of anticipation, but you are still a little worried. After all, it isn’t what you had originally hoped for, and the house may need some repairs. But you are determined to accept it, and tackle everything one step at a time. You open the front door, and suddenly you are thrilled with what you see. The house is lovely, and has lots of character. The rooms are smaller but it’s decorated with beautiful attention and detail. The kitchen has marble instead of granite, and the bathroom has a soaker tub instead of a Jacuzzi. There isn’t a walk-in closet in sight, but the rooms all come with an indescribable view. Somehow, you just know that it was always meant to be and that this is now home.

This is my analogy of what it will be like for people who discover that they will be caring for a baby with Down syndrome. For us, it is not a terrible place to be, it is a journey full of surprises, milestones and discovery like any other child. And as the story suggests, sometimes it’s only a matter of ‘point of view’, and surprisingly, once you have been there, you don’t want to be anywhere else. The journey, like all others doesn’t come without some bumps in the road, but once you find your way, it’s all about the place you discovered, in most cases - quite by random chance
Author: Sandi Graham-McWade, Copyright

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Wednesday, August 4, 2010

My Journal - Week 50 (04Aug10)


Wow, this week has been super busy.  I have been nose deep with working on this new website, my book, and Forums.  I finally made a request to my BBC Group friends to submit pictures and stories of their children with Down syndrome.  I have had a terrific response, and I hope that there will be more to come.

AND so with that in mind - for anyone out there, who are reading my blog and wish to participate in my request for photos and stories of Down syndrome & discovery, please please please contact me via the "Contact me" page, or email me directly at tkd73@sympatico.ca - I am looking for photos of babies, children, teens and adults with Down syndrome.  I am also looking for short stories of your journey's to add to my new website and also to my book, "Welcome to Our House".  I decided to add a final chapter to my book, (which is what this blog was started for) that will have short stories about other families journey's with or about their discovery about Down syndrome.  I am so thrilled and excited that so many people wish to be a part of this, and because of the response, I have been so busy and unable to post to my own blog!

Even though it would seem I have forgotten to keep people posted about Hunter, in the back ground I have been planning his birthday party like a mad woman.  After all, it is his very first birthday coming in 11 days!  And as far as Hunter is concerned, he has been up to his usual antics, the newest and most latest discovery is pointing.  Not only is he pointing, but he is pointing to noses!  We have been working hard to help Hunter with identifying parts of the body.  And he seems to be overly interested in "the nose"!  Both ours and his.  Just today I asked him to show Momma "nose" and he pointed right at my nose, touching it and smiling at me.  I was absolutely floored!  I asked him two more times, and he did it right on cue.  Grandma was watching us point to our noses, and so proud that Hunter did what he was asked.  What a smart boy.  Hunter is continuing to attempt to stand up and literally walk away... it would seem, the newest discovery since learning to stand up and also crawling, is that he should put the two together, and try to walk!  Unfortunately, Hunter's balance is not quite at the stage where he can take off and walk without Mommy holding his hands.  So for now, he is quite demanding, and is making it quite clear that he would like to stand up and walk holding onto Mommy's hands.  I guess it's only a matter of time.  Speaking of making it clear, Hunter's latest undesirable trick these days includes screaming to get attention... and I mean screaming.  Hunter is very good at ensuring that if you don't respond to him when he wants you to, he has resorted to yelling at the top of his lungs to make sure you pay attention to him.  Since no one likes yelling, we have been trying to get the message across that we don't respond to yelling, and it would seem that since Hunter is such an expressive boy, he now shows you when he is mad or upset by slapping his hands down onto his legs in displeasure, and grumbling while doing it.  It's very interesting to watch, and also try not to laugh when he does it, over and over.

Now, speaking of forgetting, I did however forget to post some pictures that were taken on Daddy and Mommy's wedding anniversary (Which we spent the earlier part of the day at a picnic in the park with Grandma's high school charity group.)  Since I forgot to post on that day, I will steal some air time here and post them here with some other seriously CUTE pictures of Mr. Hunter bunny.
A warning - I have a lot of picture to post....

Yay! It's my bath time, and this here is my rubber ducky ring!

Now this is my water cup and I fill it and then empty it!

Ohhh, don't I look like I am having a great time!

Yes, I know - I am just so cute.  I am trying to look shy - is it working?

Wassssup?!  Ya, beat that Gene Simmons!

You didn't just pour that on my head... Okay, you know - I will get you back...

See, here I am setting you up by making  myself look cute again!

Haha!  I am practising to get you back...  I can kick this water right out of the tub!

I will give you that cute look again, and you wont even know what hit you!

Ha!  Got you Daddy!  Now you are just as wet as I am!

And a round of applause goes to Hunter!  For deceptively wetting up Mommy & Daddy!

Look at me, I have got my Mommy wrapped around my little finger!

Mommy is asking me to point to her nose again...

If I show her, maybe she will stop asking me this silly question! Doesn't she know where it is?

Yep, that's me in the buff!  I think they call this my birthday suit!

I have such a cute bum!  And yes, I know it too!

My first picnic!  And I am not sure what to make of it!  Can we eat now?

Didn't anyone tell you I am too little for Blue Light?  Oh, I see, it's just water!

Grandpa Did I win that?  I must have won it because I am so cute!

Yep, those are my parents, they said something about an Anniversary!
Well, that is it for now for the photos!  Yes, I know - what do you mean that was it?  You mean a ton of them....  I had quite a few saved up.  I think it might be a bit before I load up that many at one time!  I hope you enjoyed them.

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