Welcome to Our House - The Analogy ©

Having a baby is special. For some, it’s a lifelong dream, for others, a wonderful surprise. Either way, many of us have thought about taking this journey and whether it’s planned or a pleasant surprise, we all have preconceived ideas about what our child will look and be like. But what if it isn’t what we planned or expected? This is a short story I have written for parents who have or are expecting an exceptionally special child.

Welcome to our House – An analogy

After many months of dreaming, you finally decide it’s time. You are going to build that perfect house of your dreams. You have saved and saved, and now it’s time to put your plan into action. You find a wonderful, perfect piece of land in the city. It’s exactly what you are looking for – because it’s the plan that everyone talks about. You envision the all brick house sitting on luscious green grass, surrounded by a white picket fence. Inside is a marble foyer leading into a family room with beautiful oak hardwood floors. Granite lines the kitchen counter tops and there is an island sink in the middle. Upstairs has four perfect bedrooms and the master bedroom has an ensuite bathroom and an enormous walk-in closet, of course. It’s truly a dream come true, and it’s only a matter of time. You purchase the land and think to yourself, in nine short months, you will have it all.

But suddenly your agent calls to tell you, the land is not properly zoned, and the city has not approved it for building your perfect home. They have instead, given you land in the country, where an old country home sits. You are absolutely devastated, your dreams vanishing right before your eyes. You know you can’t back out now, you need a place to live, and despite it not being what you wanted, you know that somehow you will manage and that you can continue on.

You tell everyone what has happened, and everyone is disappointed, some even offering their condolences. You know that everyone else has a nice city home, and that was what you had planned, but you have to come to terms with the fact that you must learn to live in the country.

You go to see the property every month until closing and something funny happens. You start to fall in love with the place. The air is fresh, it’s peaceful and serene. There’s a pond on the land, and the house, though not a new all brick home, is quaint, and has lots of hidden potential. You soon realize it’s not a awful place, it’s just a different place. It’s slower paced than the city, less noisy and flamboyant, but it’s beautiful none the less. And in the process, you soon realize you may even get to meet some new and wonderful neighbours.

Its closing day and you suddenly find yourself full of anticipation, but you are still a little worried. After all, it isn’t what you had originally hoped for, and the house may need some repairs. But you are determined to accept it, and tackle everything one step at a time. You open the front door, and suddenly you are thrilled with what you see. The house is lovely, and has lots of character. The rooms are smaller but it’s decorated with beautiful attention and detail. The kitchen has marble instead of granite, and the bathroom has a soaker tub instead of a Jacuzzi. There isn’t a walk-in closet in sight, but the rooms all come with an indescribable view. Somehow, you just know that it was always meant to be and that this is now home.

This is my analogy of what it will be like for people who discover that they will be caring for a baby with Down syndrome. For us, it is not a terrible place to be, it is a journey full of surprises, milestones and discovery like any other child. And as the story suggests, sometimes it’s only a matter of ‘point of view’, and surprisingly, once you have been there, you don’t want to be anywhere else. The journey, like all others doesn’t come without some bumps in the road, but once you find your way, it’s all about the place you discovered, in most cases - quite by random chance
Author: Sandi Graham-McWade, Copyright

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Friday, May 14, 2010

My Journal - Week 38 (14May10)

Did anyone say dessert?

It's been a week since I wrote.  A lot has been going on with me, pregnancy can consume a woman in so many different ways and unfortunately when it's nausea that overtakes you, it is hard to keep up with everything.  However, as a trooper I am persevering!  Despite doctors appointments and Hunter growing up right before my eyes - I had to sit down and get back at it - Blogging that is!

The nice, neat, new, NEWS....
Hunter had his monthly E.I. appointment with Jenn on Monday past.  We had wonderful and rave reviews from Jenn.  Hunter is developing so well, sitting independently and making the effort to crawl by getting up on all fours rocking and trying to go somewhere, (mostly backward but trying to go forward too).  He pivots around and even turns toward you when you call his name.  His favourite mode of transportation is still log rolling away so we have to watch Hunter like a hawk when he is on the floor!  He is saying Momma and Dadda specifically to each of us appropriately.  His cognitive development is extremely exciting.  He sorts items, throws "roll alongs" away from his Exersaucer for fun - boy do those hurt if you get pinged off with one!  He choses specific colour toys and he knows how to get and play with his Disney Baby Einstein music toys (Play-yard and Exersaucer) to hear his favourite song "Old MacDonalad".  (Out of 5 animal sounds and 5 songs, he knows the correct combination to press in order to hear the song he loves.)  He stands independently holding onto furniture and even took a micro step with Jenn holding him.  The thing I love the most is he is demonstrating such affection when he wants to hug us and he reaches out with his open hand to cup your chin and brings your face closer to his.  He pats you anywhere, lovingly.  He returns soft strokes.  He'll even give you five if you ask him!  All these wonderful things are so sweet but don't let him fool you, he can be a cranky monster when he hasn't had his two daily naps!  He now weighs 17.8 pounds and I'm not too sure but I think he is still 28 inches long.  We will get "the tail of the tape" on Thursday the 20th at Hunter's 9 month checkup.  Today, Hunter had his first two solid meal day.  Before today he was having milk for breakfast, milk for lunch, organic baby food for dinner followed by milk to wash it down and then one last milk before bed.  Tonight we added 1/2 a jar of organic fruits for dessert!  Yummy!  Hunter loved his blueberry/apple sauce dessert (so did Daddy and I!).

In my other world - the land of the Internet, I have been made the Community Leader for the Down syndrome Community on MedHelp's website.  I use my personal experience and knowledge to help, discuss and give answers to people asking questions regarding Down syndrome.  I enjoy being able to help people who have questions or just need some support with respect to Down syndrome.  It's part of my own "genetic make up" to live up to my name Sandi which means Helper & Defender of Mankind.

I am also currently six weeks pregnant with baby number two, and had a doctors appointment today just to see where I am at.  We have an ultrasound booked and a follow-up doctors appointment next week.  Knowing all of this, we are also looking into purchasing a second larger vehicle that can carry myself, John, Hunter, baby #2, and John's three other kids.  We had literally outgrown my Chevy Avalanche when it came to transporting everyone all together, but when we don't have my step kids, the Avalanche remains our primary vehicle.  So a friend of ours proposed selling us his Chevy Suburban (eight seater) which will solve our current problem when we are all together.

Just thought you all might like to see a few recent pictures of Mr. Hunter!

[Mommy, Me and the protector Twiggy cat.]

[Mommy says I am allowed to pet the kitty, but no pulling her ears!]

[Ha!  I snuck in an ear pulling, but the kitty said she didn't mind.....]

[How do you like my Exersaucer?  It was a gift from my friend Chase!]

[I love free toys from my friends.  It helps me to learn so much & it's fun!]

In a nutshell, that is where we are all at!  Hope to be able to give you all more updates as soon as possible!

1 comment:

  1. So happy to here Hunter is doing so well!! And all the best to you. You are very ambitious.


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