Welcome to Our House - The Analogy ©

Having a baby is special. For some, it’s a lifelong dream, for others, a wonderful surprise. Either way, many of us have thought about taking this journey and whether it’s planned or a pleasant surprise, we all have preconceived ideas about what our child will look and be like. But what if it isn’t what we planned or expected? This is a short story I have written for parents who have or are expecting an exceptionally special child.

Welcome to our House – An analogy

After many months of dreaming, you finally decide it’s time. You are going to build that perfect house of your dreams. You have saved and saved, and now it’s time to put your plan into action. You find a wonderful, perfect piece of land in the city. It’s exactly what you are looking for – because it’s the plan that everyone talks about. You envision the all brick house sitting on luscious green grass, surrounded by a white picket fence. Inside is a marble foyer leading into a family room with beautiful oak hardwood floors. Granite lines the kitchen counter tops and there is an island sink in the middle. Upstairs has four perfect bedrooms and the master bedroom has an ensuite bathroom and an enormous walk-in closet, of course. It’s truly a dream come true, and it’s only a matter of time. You purchase the land and think to yourself, in nine short months, you will have it all.

But suddenly your agent calls to tell you, the land is not properly zoned, and the city has not approved it for building your perfect home. They have instead, given you land in the country, where an old country home sits. You are absolutely devastated, your dreams vanishing right before your eyes. You know you can’t back out now, you need a place to live, and despite it not being what you wanted, you know that somehow you will manage and that you can continue on.

You tell everyone what has happened, and everyone is disappointed, some even offering their condolences. You know that everyone else has a nice city home, and that was what you had planned, but you have to come to terms with the fact that you must learn to live in the country.

You go to see the property every month until closing and something funny happens. You start to fall in love with the place. The air is fresh, it’s peaceful and serene. There’s a pond on the land, and the house, though not a new all brick home, is quaint, and has lots of hidden potential. You soon realize it’s not a awful place, it’s just a different place. It’s slower paced than the city, less noisy and flamboyant, but it’s beautiful none the less. And in the process, you soon realize you may even get to meet some new and wonderful neighbours.

Its closing day and you suddenly find yourself full of anticipation, but you are still a little worried. After all, it isn’t what you had originally hoped for, and the house may need some repairs. But you are determined to accept it, and tackle everything one step at a time. You open the front door, and suddenly you are thrilled with what you see. The house is lovely, and has lots of character. The rooms are smaller but it’s decorated with beautiful attention and detail. The kitchen has marble instead of granite, and the bathroom has a soaker tub instead of a Jacuzzi. There isn’t a walk-in closet in sight, but the rooms all come with an indescribable view. Somehow, you just know that it was always meant to be and that this is now home.

This is my analogy of what it will be like for people who discover that they will be caring for a baby with Down syndrome. For us, it is not a terrible place to be, it is a journey full of surprises, milestones and discovery like any other child. And as the story suggests, sometimes it’s only a matter of ‘point of view’, and surprisingly, once you have been there, you don’t want to be anywhere else. The journey, like all others doesn’t come without some bumps in the road, but once you find your way, it’s all about the place you discovered, in most cases - quite by random chance
Author: Sandi Graham-McWade, Copyright
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Tuesday, August 2, 2011

My Journal - Week 101 (02Aug11)

DOWN SYNDROME....
I TOLD YOU I AM AN ADVOCATE!!

Many people may not realize the commonality of Tattoos these days.  I am not your usual plain old everyday person.  I like art permanently inked onto my body.  I may have many tattoos on my body but one thing I ensure is that each one of my tattoos has significant meaning behind it.  I have always planned and carefully thought out each and every single one of my pieces.  I know that tattoos are much more accepted these days and that viewing a person with many tattoos has less of a shock factor than it once did.  I personally do not tattoo my body to shock people, as many out there do.  My tattooing is significant, which for every person it should be.  There are however, people out there who do have plenty of images on their person that seem to make no sense or that the general public may question.  What I have realized about myself is, I would only get a tattoo that I believe will stand the test of time.  In other words, will I still enjoy this image when I am a grandmother?  As it stands for now, I do believe that I will.   One image that I know I will never question is one that I had done today.

Since my life has become "Everything Down syndrome" I thought, if all my tattoos signify a special significance in my life, why not an image I developed which is all about Ds?

Here is my latest tattoo:

Starting from the right side...

The middle (it's too round to take one shot)...

The left side...

A final mid shot...

It's my copyrighted Ds Advocate Ribbon Magnet!!  And why not, it's my own creation!!  (PLUG - those who would like to purchase an advocate ribbon magnet for their vehicle, please visit my publications page or my other website www.welcometoourhouse-ds.com).


I can understand that there are those out there who will not like or appreciate the tattoo art.   Some will feel that it's too much, others may reach back to the old days.  For those who do not like tattoo work, I can't be sorry - it's a part of who I am, they are for me.  For those more current or modern folks who do like the images, I thank you!  Either way, hopefully you will love me for me, I believe Daddy, Hunter and Hayleigh do!

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