Welcome to Our House - The Analogy ©

Having a baby is special. For some, it’s a lifelong dream, for others, a wonderful surprise. Either way, many of us have thought about taking this journey and whether it’s planned or a pleasant surprise, we all have preconceived ideas about what our child will look and be like. But what if it isn’t what we planned or expected? This is a short story I have written for parents who have or are expecting an exceptionally special child.

Welcome to our House – An analogy

After many months of dreaming, you finally decide it’s time. You are going to build that perfect house of your dreams. You have saved and saved, and now it’s time to put your plan into action. You find a wonderful, perfect piece of land in the city. It’s exactly what you are looking for – because it’s the plan that everyone talks about. You envision the all brick house sitting on luscious green grass, surrounded by a white picket fence. Inside is a marble foyer leading into a family room with beautiful oak hardwood floors. Granite lines the kitchen counter tops and there is an island sink in the middle. Upstairs has four perfect bedrooms and the master bedroom has an ensuite bathroom and an enormous walk-in closet, of course. It’s truly a dream come true, and it’s only a matter of time. You purchase the land and think to yourself, in nine short months, you will have it all.

But suddenly your agent calls to tell you, the land is not properly zoned, and the city has not approved it for building your perfect home. They have instead, given you land in the country, where an old country home sits. You are absolutely devastated, your dreams vanishing right before your eyes. You know you can’t back out now, you need a place to live, and despite it not being what you wanted, you know that somehow you will manage and that you can continue on.

You tell everyone what has happened, and everyone is disappointed, some even offering their condolences. You know that everyone else has a nice city home, and that was what you had planned, but you have to come to terms with the fact that you must learn to live in the country.

You go to see the property every month until closing and something funny happens. You start to fall in love with the place. The air is fresh, it’s peaceful and serene. There’s a pond on the land, and the house, though not a new all brick home, is quaint, and has lots of hidden potential. You soon realize it’s not a awful place, it’s just a different place. It’s slower paced than the city, less noisy and flamboyant, but it’s beautiful none the less. And in the process, you soon realize you may even get to meet some new and wonderful neighbours.

Its closing day and you suddenly find yourself full of anticipation, but you are still a little worried. After all, it isn’t what you had originally hoped for, and the house may need some repairs. But you are determined to accept it, and tackle everything one step at a time. You open the front door, and suddenly you are thrilled with what you see. The house is lovely, and has lots of character. The rooms are smaller but it’s decorated with beautiful attention and detail. The kitchen has marble instead of granite, and the bathroom has a soaker tub instead of a Jacuzzi. There isn’t a walk-in closet in sight, but the rooms all come with an indescribable view. Somehow, you just know that it was always meant to be and that this is now home.

This is my analogy of what it will be like for people who discover that they will be caring for a baby with Down syndrome. For us, it is not a terrible place to be, it is a journey full of surprises, milestones and discovery like any other child. And as the story suggests, sometimes it’s only a matter of ‘point of view’, and surprisingly, once you have been there, you don’t want to be anywhere else. The journey, like all others doesn’t come without some bumps in the road, but once you find your way, it’s all about the place you discovered, in most cases - quite by random chance
Author: Sandi Graham-McWade, Copyright
©

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Saturday, June 11, 2011

My Journal - Week 93 (11Jun11)

A DISAPPEARING ACT??!!

For all my readers, all my friends and family.  I am alive, well and truly sorry for not posting more often.  I have had many many emails asking if I am okay, and I am certainly not surprised that people are asking.  After all, posting nearly daily, and then weekly - people were bound to wonder what happened to Sandi when not a single post was made for nearly four weeks!  The good news is, I am absolutely fine, physically I am well for a 39 week pregnant mom with extensive back pain and extreme swelling in my limbs.  I suffered quite the scare after having stopped one of my medications (blood thinner called Lovenox) which I was required to take twice daily after discovering my very own double dosed genetic mutation called MTHFR or Thrombophilia.  For a few weeks after stopping my blood thinner injections, I suddenly discovered that my right leg was swelling more than a little tolerable bit, and was feeling a horrible amount of pain in the back of my calf.  Worried that I might be suffering with a DVT (Deep Vein Thrombosis) or blood clot, I nearly went into panic mode.  A DVT that dislodges and travels to one's lungs can be fatal, causing a pulmonary embolism.  This kind of problem is one of the concerns a person with thrombophilia must be aware of, especially during pregnancy.  It seems after many visits to my two doctors that it isn't likely that it's a clot.  So, for now I am relieved.  And I will be further relieved after this upcoming Wednesday, when our newest addition to the family is expected to arrive via scheduled C-Section.

The past four weeks has been extremely busy with respect to Down syndrome!  Besides running my bi-weekly YMCA Play to Learn parent/child support-play group, I have been working night and day preparing, creating and finally distributing the Durham Down syndrome Associations brand new Newsletter that I have been put in charge of.  My official title, Executive Director of Resources, Memberships and Newsletters has definitely added to my already busy and chaotic life, but I love it nonetheless.  The executives and I have been meeting often and working hard to ensure that we meet the needs of the many people in Durham, Ontario.  I am proud to say, I have been able to reach many new families and bring them awareness of our Association and also provide them with the resources and support that they so very much deserve.

On top of creating a brand new Newsletter, I am also the new Webmaster for the DDSA's website, which at the moment is in need of a fresh new look.  I invite everyone to take a look at the Newsletter that I created, for Summer 2011 edition.  This new bold newsletter was distributed to every member via Email, Postal mail or while at our last Meet & Greet open General Meeting.  The Newsletter will be issued quarterly (seasonally) and will always be posted to the website for anyone to view.  The website can be found at, www.ddsa.ca  AND I am also posting it here:




Finally, because I had not posted a blog entry for sometime, many have been asking about Hunter's swimming progress!  I am happy to report that swimming lessons have been going fantastically, and I do plan to upload his newest swimming lesson, just as soon as I install the Sony Software to my new computer.  I recently purchased an iMac (yes, dare I say it - I have left the PC world and joined the small crew of people who enjoy MAC products).  I just want to say for the record, I wish I had switched to a MAC a whole lot sooner than this past month.  If you are a creative person, and love to work on web designing, photo editing, movies etc., there is no reason to stay on a PC.  I have never had such an easier time working with a computer than these past few weeks.  Honestly, working with Apple products has been such a treat and so much less stress than all my previous years on a PC - but it's not for everyone.

I will close this moderate length of a post with a few photos of Hunter - since it has been quite a while since anyone has seen anything from "Our House"!!

I'm getting ready for my buddy Vaun's birthday party!

Here were are, the three musketeers!  I am so happy to be with my two buddies!

Daddy, Mommy & I at the Toronto Zoo!  What a day!  So many animals....

Daddy & I sitting down having a break (at the Zoo).  Poor mommy, she's tired too!

Mommy is brave!  She's got Hayleigh inside, me outside and it's hot!  But she still looks happy!

This is my new shower!  Mommy & Daddy had it specially designed for us! 

Mommy and Uncle Ollie are hugging me up!  I love my family!

Here I am at the Brooklin Fair!  This fair was on the 5th June - we went with Vaun & Haedyn!

Wow, this is the best day ever... I got to eat Daddy's chocolate Ice Cream!!

I am such a cool boy!  I didn't ride the rides, but I got to play in the park at the Fair!

Check me out on this one!  It's a USS rocket ship!!  Don't I just "rock" it?!!

So, without fail - I think everyone can see it has literally been one thing after another this past month for this family.  The photos show we've been busy having fun, but honestly with a renovation of our bathroom, a downed Air Conditioner that had to be fixed right in the hottest of days, and our newest problem - a leak coming from the newly renovated bathroom destroying our ceiling in our dining room... (which required our contractors to return and attempt to fix the leak....) it's been one crazy month.  Somewhere in there I have had little to no time to prepare for our new little addition - Hayleigh.  But one thing we are proud to announce is that we have (finally) finalized her full name:  Hayleigh Ciarra Kaelan McWade.   So, as this week ends and the new week begins, I am sure I will become more anxious for her to arrive.  In my next post, I plan to zoom in on how Hunter has been handling all the recent changes, the milestones and newest behaviours!



2 comments:

  1. I'm so glad your doing well. I figured you must have been busy since there hasn't been any posts. :) I didn't realize you that far along. I can't wait to see pictures of Miss Hayleigh when she gets here. I love her name by the way. Its so pretty. :) Congrats again.

    ReplyDelete
  2. Buddy and I wish you all the best. Buddy is busy planning his 38th birthday which will be on the day of the final Harry Potter movie release. He's always been a fan. Guess we'll be going.-Heidi

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