My Journal - Week 81 (19Mar11)


The title you know... or hopefully so!  It's the title of our blog, it's the title of my upcoming newest book (that has been in the works the longest) and it's also the title of the Analogy I had written way way back when - when Hunter was just a peanut in my womb.

Back when I first started writing, or rather when I first started "really" writing I wrote the analogy that has come to be the "token" part of my blog, books and other things Down syndrome.  I had it copyrighted, I also had it published in a few places such as online in association websites and my personal works.  I had gone a few steps further (back in 2009) and reached out to a few magazines and newspapers - looking and hoping that they would like to publish the analogy as part of a story or single article submission.  Two different magazine companies eventually got back to me and told me that they would be happy to publish my analogy.  One of those magazines was "Exceptional Families".  This is a magazine that no parent who has a child with any type of need should be without.  The editor contacted me and the rigorous work of getting my story into an edition was born.  After many edits, photos and emails, my story hit the press just in time for the Spring 2011 edition - Volume 6, No.3.

I am so very proud to present, my two page spread of "Welcome to Our House - An Analogy" in print. 

Pages 30 & 31 in the magazine - Click to enlarge & then click again to magnify more

Exceptional Family magazine - Spring 2011 edition Volume 6 No3. 
You can find this magazine in any Chapters book store or any place that sells a large variety of magazines.  I do believe however, this is their last "printed" edition as they will be moving to an online edition.  I am sad to see such a wonderful magazine stop printing hard copies but I do fully understand that the future is all about the web and online subscriptions.  I have certainly gained a lot by reading this magazine, from doctor articles to very specific information on Down syndrome in particular as well as many other types of medical special needs.  Exceptional Family will still be available to order as a subscription, but as I read (on page 5) in this last printed edition, all future editions will be online. 

On other fronts, I have not been taking as many photos as I usually do of Mr. Hunter-bunny so I decided to post a few today that I had taken this past week.

Yummy Mommy!  I didn't know that peas and broccoli could taste so good!
Yes, it's true - Mommy actually made Daddy take a picture of my dinner....
Now that I am all done eating, it's time for a photo shoot of course!
And for the first time I discovered Mommy's tummy is bigger than my own!
Yes, it's true... my belly has suddenly taken over.  I do believe my belly is now larger than it was when I was 37 weeks pregnant with Hunter.  The sad reality?  I am only 26 weeks pregnant in this picture.  So when I say my belly has taken over, seriously - I mean it's taken over the whole wide world!  I can't help but think how many pounds Hayleigh will be when she's due.  They say (someone says) that if you have a small or lower weighted baby, you will likely have another.  It's genetic.  Well, I am pretty sure that will not be true in this case.  I have already gained 20 pounds this time around and for my whole pregnancy with Hunter I gained only 20 pounds.  I just hope I don't explode!  My back is already causing me to be really uncomfortable.  Having multiple serious back injuries and degenerative disk disease (to name one of the many medical issues that I suffer with relating to my back) makes pregnancy very difficult.  And while it may not appear that I am suffering (as I sit there above with a smile on my face) I am in a lot of pain but seriously happy to be pregnant after all the losses I have endured.  Make no mistake, pregnancy is hard enough on the body without all the additional medical issues I face.  I am very grateful that I have my husband and parents to help me.  Without their help, I'd physically not be able to get through the day.  This coming up Wednesday, I finally get to see an anesthesiologist at Mt. Sinai hospital to talk about getting a spinal epidural to help with my sciatic pains.  For three years prior to my pregnancy with Hunter, I used to get epidurals in my L4 - L5 every three to four weeks to help minimize the nerve pains I suffer with.  After Hunter was conceived I had to stop getting the spinal injections.  This time around, the pains I suffer with have progressed and it's nearly at a point where I can't function and I am always in pain.  Imagine a constant electric shock or electric knife stabbing from your lower back and down your legs.  That's what I deal with and the pregnancy only makes it worse.  Hopefully I can get a bit of relief with the epidural as I did in the past.  (It's not quite the same as an epidural you receive in labour in terms of complete immobility but the numbing of the nerves as a result is the same.)

Hope to keep you all posted as things progress.


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