Welcome to Our House - The Analogy ©

Having a baby is special. For some, it’s a lifelong dream, for others, a wonderful surprise. Either way, many of us have thought about taking this journey and whether it’s planned or a pleasant surprise, we all have preconceived ideas about what our child will look and be like. But what if it isn’t what we planned or expected? This is a short story I have written for parents who have or are expecting an exceptionally special child.

Welcome to our House – An analogy

After many months of dreaming, you finally decide it’s time. You are going to build that perfect house of your dreams. You have saved and saved, and now it’s time to put your plan into action. You find a wonderful, perfect piece of land in the city. It’s exactly what you are looking for – because it’s the plan that everyone talks about. You envision the all brick house sitting on luscious green grass, surrounded by a white picket fence. Inside is a marble foyer leading into a family room with beautiful oak hardwood floors. Granite lines the kitchen counter tops and there is an island sink in the middle. Upstairs has four perfect bedrooms and the master bedroom has an ensuite bathroom and an enormous walk-in closet, of course. It’s truly a dream come true, and it’s only a matter of time. You purchase the land and think to yourself, in nine short months, you will have it all.

But suddenly your agent calls to tell you, the land is not properly zoned, and the city has not approved it for building your perfect home. They have instead, given you land in the country, where an old country home sits. You are absolutely devastated, your dreams vanishing right before your eyes. You know you can’t back out now, you need a place to live, and despite it not being what you wanted, you know that somehow you will manage and that you can continue on.

You tell everyone what has happened, and everyone is disappointed, some even offering their condolences. You know that everyone else has a nice city home, and that was what you had planned, but you have to come to terms with the fact that you must learn to live in the country.

You go to see the property every month until closing and something funny happens. You start to fall in love with the place. The air is fresh, it’s peaceful and serene. There’s a pond on the land, and the house, though not a new all brick home, is quaint, and has lots of hidden potential. You soon realize it’s not a awful place, it’s just a different place. It’s slower paced than the city, less noisy and flamboyant, but it’s beautiful none the less. And in the process, you soon realize you may even get to meet some new and wonderful neighbours.

Its closing day and you suddenly find yourself full of anticipation, but you are still a little worried. After all, it isn’t what you had originally hoped for, and the house may need some repairs. But you are determined to accept it, and tackle everything one step at a time. You open the front door, and suddenly you are thrilled with what you see. The house is lovely, and has lots of character. The rooms are smaller but it’s decorated with beautiful attention and detail. The kitchen has marble instead of granite, and the bathroom has a soaker tub instead of a Jacuzzi. There isn’t a walk-in closet in sight, but the rooms all come with an indescribable view. Somehow, you just know that it was always meant to be and that this is now home.

This is my analogy of what it will be like for people who discover that they will be caring for a baby with Down syndrome. For us, it is not a terrible place to be, it is a journey full of surprises, milestones and discovery like any other child. And as the story suggests, sometimes it’s only a matter of ‘point of view’, and surprisingly, once you have been there, you don’t want to be anywhere else. The journey, like all others doesn’t come without some bumps in the road, but once you find your way, it’s all about the place you discovered, in most cases - quite by random chance
Author: Sandi Graham-McWade, Copyright

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Tuesday, September 28, 2010

My Journal - Week 58 (28Sep10)

CONGRESS ELIMINATES "R-WORD" - just in time for Hunter...

According to CNN's blog website: http://pagingdrgupta.blogs.cnn.com/2010/09/27/congress-eliminates-the-r-word/ .

"And now, it’s a step closer to elimination from the federal government language.
The House of Representatives approved a bill that eliminates the use of the words “retarded” and “retardation” in health, education and labor laws.
The bill changes the terms from “mental retardation” to “intellectual disability” and “mentally retarded individual” to “individual with an intellectual disability.” This shift would make it more consistent with the language already used by the Centers for Disease Control and Prevention, the United Nations, and the White House." - CNNhealth.com Writer/Producer

I decided with the onset of Hunter's watching wordy commercials with bright colours and fancy tunes that it was time for us to deploy one of my purchases, "Your Baby Can Read" - a program designed to teach babies to read using words, pictures and sounds.  Using a multi level approach.  The first time I played the starter DVD, Hunter watched the whole thing.  I was completely pleased with the presentation and style of the product.  I have no doubt that the system will work, providing I am able to follow the schedule that the program outlines.  The whole reasoning behind the product makes complete sense.  The important fact is, it's only good if Hunter will watch it and so far he seems to like it.  (We are only on day two though.)

I am posting some photos I took of Hunter watching the DVD today.  I am no doctor or scientist, but it's apparent that Hunter knows exactly what the word "Wave" and "Nose" mean....  I have to take responsibility for those however, I made it a point to teach him those two words over and over in the last few months.  It's no wonder he understood them when they were said on the screen!

This is the new program Mommy bought me to watch!
It's called, "Your Baby Can Read!"
Daddy is holding me and helping me to "read".
After the word they show me what it means! 
I think this is so neat!  I am learning a lot of words from this first DVD.
I think I know this word!  I usually say "Baba" when I see a baby!
And look!  There is a "baba"!  I am so smart!
There is a lot of different words for me to learn.
It even sings my favourite song, Twinkle Twinkle Little Star!
Lots of repetition helps my mind to learn!
And lots of pictures of Babies!
Before this, I didn't even know what a "Gorilla" was!
Now I know!
I love "clapping"!
And see?  They showed me a Gorilla clapping and I can do it too, all by myself!
Now the only thing is, I have been waving toward myself (with my left hand) lately!
Mommy & Daddy help me with this one... "Arm's up".
And I have to learn to put my "Arms Down"!
But so long as we can "clap", it's my favourite!
I do such a good job with "Clapping"! 
AND, because Hunter got a hair cut yesterday, (and yes - it was still somewhat of a disaster...) I am posting the outcome.  I did initially think that it was going to go alright since the first two minutes of using the shears Hunter was really good and happy.  It was a false sense of security though, because after those first quiet two minutes, all heck broke loose and the tears and a "scared" Hunter returned.  I managed to finish despite his being so upset and thrashing wildly about.  Thank goodness they are shears and not much can go wrong.... I think he looks very sweet and handsome.  It would also seem that since he has lost about 10 pounds of hair, that he looks like he lost the same in body weight!  Removing all that hair makes his face look so thin now!  Here are some cutie pie photos after the hair cut.

"What do you say about this Mommy?!!"  "I mean, where did my hair go?"
I am not even sure what to say...  But if you think I look good then it's okay.
I am starting to agree.  I think I look like a cool dude.

Ah ha!  Fooled you!  I know I am one handsome looking baby boy!

1 comment:

  1. That is neat. Hunter looks like he is really enjoying the reading program. Well I guess you know what he is getting for Christmas....


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