Welcome to Our House - The Analogy ©

Having a baby is special. For some, it’s a lifelong dream, for others, a wonderful surprise. Either way, many of us have thought about taking this journey and whether it’s planned or a pleasant surprise, we all have preconceived ideas about what our child will look and be like. But what if it isn’t what we planned or expected? This is a short story I have written for parents who have or are expecting an exceptionally special child.

Welcome to our House – An analogy

After many months of dreaming, you finally decide it’s time. You are going to build that perfect house of your dreams. You have saved and saved, and now it’s time to put your plan into action. You find a wonderful, perfect piece of land in the city. It’s exactly what you are looking for – because it’s the plan that everyone talks about. You envision the all brick house sitting on luscious green grass, surrounded by a white picket fence. Inside is a marble foyer leading into a family room with beautiful oak hardwood floors. Granite lines the kitchen counter tops and there is an island sink in the middle. Upstairs has four perfect bedrooms and the master bedroom has an ensuite bathroom and an enormous walk-in closet, of course. It’s truly a dream come true, and it’s only a matter of time. You purchase the land and think to yourself, in nine short months, you will have it all.

But suddenly your agent calls to tell you, the land is not properly zoned, and the city has not approved it for building your perfect home. They have instead, given you land in the country, where an old country home sits. You are absolutely devastated, your dreams vanishing right before your eyes. You know you can’t back out now, you need a place to live, and despite it not being what you wanted, you know that somehow you will manage and that you can continue on.

You tell everyone what has happened, and everyone is disappointed, some even offering their condolences. You know that everyone else has a nice city home, and that was what you had planned, but you have to come to terms with the fact that you must learn to live in the country.

You go to see the property every month until closing and something funny happens. You start to fall in love with the place. The air is fresh, it’s peaceful and serene. There’s a pond on the land, and the house, though not a new all brick home, is quaint, and has lots of hidden potential. You soon realize it’s not a awful place, it’s just a different place. It’s slower paced than the city, less noisy and flamboyant, but it’s beautiful none the less. And in the process, you soon realize you may even get to meet some new and wonderful neighbours.

Its closing day and you suddenly find yourself full of anticipation, but you are still a little worried. After all, it isn’t what you had originally hoped for, and the house may need some repairs. But you are determined to accept it, and tackle everything one step at a time. You open the front door, and suddenly you are thrilled with what you see. The house is lovely, and has lots of character. The rooms are smaller but it’s decorated with beautiful attention and detail. The kitchen has marble instead of granite, and the bathroom has a soaker tub instead of a Jacuzzi. There isn’t a walk-in closet in sight, but the rooms all come with an indescribable view. Somehow, you just know that it was always meant to be and that this is now home.

This is my analogy of what it will be like for people who discover that they will be caring for a baby with Down syndrome. For us, it is not a terrible place to be, it is a journey full of surprises, milestones and discovery like any other child. And as the story suggests, sometimes it’s only a matter of ‘point of view’, and surprisingly, once you have been there, you don’t want to be anywhere else. The journey, like all others doesn’t come without some bumps in the road, but once you find your way, it’s all about the place you discovered, in most cases - quite by random chance
Author: Sandi Graham-McWade, Copyright

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Wednesday, January 12, 2011

My Journal - Week 73 (12Jan11)

Looks who's "Steering" all by himself!!

So it appears that if you let your baby walk all around the house, he'll eventually get that he has to steer the walker on his own!  For Christmas I bought Hunter a new walker, one that has a little more entertainment and learning to it then his first one which was great for the first steps of learning to walk with a walker.  In just two tries around our house, Hunter learned quite quickly and all by himself how to turn his V-Tech Sit to Stand train!  And I don't mean little turns, I mean huge turns which would definitely need someone to correct and steer in order for him to make a complete circle.  Now, he's literally taking off, running laps (well walking fast) around the whole first floor of our home.  We were so impressed, (probably almost as impressed as Hunter was) with this new ability!  It gives new meaning to being able to explore and learn to walk that much quicker!  I do believe this has given (or will give) Hunter that extra added confidence that he needs in order to take that first unassisted step without his "train" walker.  He's able to stand with objects in his hands and once and a while he forgets he isn't holding onto something and takes that teeny tiny step, but as soon as he realizes that he's not holding anything but his book or toy, he plops down onto his butt!  I know it will probably be sooner rather then later, and I hope that I am able to catch that wonderful moment on video!  But for now, I hope you will enjoy the three videos I was able to take consecutively of Hunter having so much fun learning to Steer and getting it!

In this first attempt Hunter needed a bit of help but you can clearly see him asking for the help!

In the second attempt you can see that Hunter has now got it and is having so much fun doing it all on his own!  But gets a bit distracted when the cat shows up!

In this last part, Hunter fully shows us that he is a pro at steering his Train - except for the "speed bumps" and the penguin waddle!  This time around I captured his "Train walk" from a rear view.

I hope you have enjoyed seeing the progress Hunter has made, as much as we are!  I can't wait for the next "steps" literally!

Stay tuned... and nope, we haven't yet settled on a girl name (quite yet) for our next bundle - but so far, it would seem that Ryleigh and Sierra are strong favourites among my support board friends.  Luckily I still have my best friend searching through thousands of names for me while we continue to see if there are any other possibilities!  (Yes, Daddy has literally given up and told me to call in the reinforcements.)

1 comment:

  1. Hi Sandi,
    Finally looked at Hunter's video. I am impressed...he is doing the entire circuit and turning and all (love his chatter along the way). You and John are certainly doing a good job of motivating Hunter. It just goes to show that parents have the biggest impact on a child's development and self esteem and how they are perceived by others. It is the parents who choose not to or cannot spend the time required to nurture and guide their children as needed that end up not being the losers.

    Good job you guys.


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